{"user_id":"216140","publication":"European Journal of Public Health","publisher":"Oxford University Press (OUP)","volume":30,"issue":"Supplement_5","article_type":"original","date_updated":"2021-06-09T14:16:02Z","year":"2020","main_file_link":[{"url":"https://www.youtube.com/watch?v=ezeTj-YMGsA","open_access":"1"}],"license":"https://creativecommons.org/licenses/by-nc-nd/4.0/","intvolume":" 30","type":"journal_article","oa":"1","tmp":{"short":"CC BY-NC-ND (4.0)","legal_code_url":"https://creativecommons.org/licenses/by-nc-nd/4.0/legalcode","image":"/images/cc_by_nc_nd.png","name":"Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International (CC BY-NC-ND 4.0)"},"quality_controlled":"1","publication_identifier":{"eissn":["1464-360X"],"issn":["1101-1262"]},"author":[{"orcid":"0000-0002-1944-7422","id":"216140","last_name":"Grebe","full_name":"Grebe, Christian","orcid_put_code_url":"https://api.orcid.org/v2.0/0000-0002-1944-7422/work/94897085","first_name":"Christian"},{"last_name":"Voß","first_name":"Mathias","full_name":"Voß, Mathias"},{"full_name":"Heitland, Lisa","first_name":"Lisa","last_name":"Heitland"},{"last_name":"Nadolny","first_name":"Stephan","full_name":"Nadolny, Stephan"},{"last_name":"Latteck","full_name":"Latteck, Änne-Dörte","first_name":"Änne-Dörte","id":"206662"}],"citation":{"bibtex":"@article{Grebe_Voß_Heitland_Nadolny_Latteck_2020, title={A training program to qualify people with intellectual disabilities for inclusive research}, volume={30}, DOI={10.1093/eurpub/ckaa165.181}, number={Supplement_5}, journal={European Journal of Public Health}, publisher={Oxford University Press (OUP)}, author={Grebe, Christian and Voß, Mathias and Heitland, Lisa and Nadolny, Stephan and Latteck, Änne-Dörte}, year={2020} }","ieee":"C. Grebe, M. Voß, L. Heitland, S. Nadolny, and Ä.-D. Latteck, “A training program to qualify people with intellectual disabilities for inclusive research,” European Journal of Public Health, vol. 30, no. Supplement_5, 2020.","alphadin":"Grebe, Christian ; Voß, Mathias ; Heitland, Lisa ; Nadolny, Stephan ; Latteck, Änne-Dörte: A training program to qualify people with intellectual disabilities for inclusive research. In: European Journal of Public Health Bd. 30, Oxford University Press (OUP) (2020), Nr. Supplement_5","chicago":"Grebe, Christian, Mathias Voß, Lisa Heitland, Stephan Nadolny, and Änne-Dörte Latteck. “A Training Program to Qualify People with Intellectual Disabilities for Inclusive Research.” European Journal of Public Health 30, no. Supplement_5 (2020). https://doi.org/10.1093/eurpub/ckaa165.181.","mla":"Grebe, Christian, et al. “A Training Program to Qualify People with Intellectual Disabilities for Inclusive Research.” European Journal of Public Health, vol. 30, no. Supplement_5, Oxford University Press (OUP), 2020, doi:10.1093/eurpub/ckaa165.181.","ama":"Grebe C, Voß M, Heitland L, Nadolny S, Latteck Ä-D. A training program to qualify people with intellectual disabilities for inclusive research. European Journal of Public Health. 2020;30(Supplement_5). doi:10.1093/eurpub/ckaa165.181","apa":"Grebe, C., Voß, M., Heitland, L., Nadolny, S., & Latteck, Ä.-D. (2020). A training program to qualify people with intellectual disabilities for inclusive research. European Journal of Public Health, 30(Supplement_5). https://doi.org/10.1093/eurpub/ckaa165.181","short":"C. Grebe, M. Voß, L. Heitland, S. Nadolny, Ä.-D. Latteck, European Journal of Public Health 30 (2020)."},"doi":"10.1093/eurpub/ckaa165.181","language":[{"iso":"eng"}],"abstract":[{"text":"Background: Inclusive research aims to involve people with intellectual disabilities (ID) with their views and values in all steps of the research process. But there is a lack of published training programs that address the qualification of people with ID for their roles as co-researchers.\r\n\r\nObjectives: The aim was to develop a training program, based on constructivist didactics, in order to empower people with ID to act as initiators of health-related research, interviewers, data analysts and authors. In addition, the program aims to promote social self-organization and health literacy. The program consists of four steps: 1) Recruiting, relationship and team building; 2) Analysis of communication skills; 3) Choice of topic and formulation of a research question relevant to the lifeworld of the co- researchers 4) Exercises, carried out with an open, flexible approach, taking into account the individual biographies, knowledge, skills and interests of the team. Professional researchers moderate this process and promote the activation of knowledge and experiences. The whole process comprised weekly team meetings over a period of 7 months.\r\n\r\nResults: The co-researchers were successfully empowered to deal with new kinds of demands and tasks. As of March 2020, the co- researchers selected pain as their topic and successfully formulated research questions, developed a guideline for semi-structured interviews and acquired essential interviewing skills. Data collection and analysis are still pending.\r\n\r\nConclusions: The implemented inclusive research approach pursued here, offers opportunities for generating research findings that are more relevant for the target group and their lifeworld. Consequently, professionals can better address the needs of their clients and develop tailored interventions. For the involved co-researchers with ID the training program seems to be successful in empowering them in decision-making and in reflecting on their own and other's health-related needs.\r\n\r\nKey messages: People with intellectual disabilities can successfully be qualified as co-researchers with a 7-months weekly training program. The training program helps the co-researchers in reflecting on their own and other’s health-related needs.","lang":"eng"}],"conference":{"name":"16th World Congress on Public Health 2020","location":"Rom","end_date":"2020-10-16","start_date":"2020-10-12"},"status":"public","project":[{"name":"Medikamentenmanagement und Gesundheitsvorsorge bei Menschen mit geistiger Behinderung (MGMB)","_id":"A812CFEC-C7DA-11E9-B0AE-1F4CB252D58D"}],"title":"A training program to qualify people with intellectual disabilities for inclusive research","date_created":"2021-06-03T13:15:27Z","publication_status":"published","_id":"1171"}